Month: August 2015

Every 28 days, I get my dose of Tysarbi to help my fight with multiple sclerosis.  My body feels great after my infusion, but that feeling only lasts for about two weeks.  After that I am clumsy, slow, and generally awkward moving around the house in my wheelchair.

Have told my neurologist that for the past year the medicine has been declining in it’s effectiveness.  He tells me there is nothing they can do until my body starts displaying new scars on my spinal column in an MRI scan.  Do not want additional scars to form!

Unfortunately, I do not take getting MRI’s well.  Have to be fully sedated for the 2 hour scan.  My last sedation took 3 days to get fully awake from.  Turns out that problem with alertness from sedation runs in the family.

My body does not respond like most people to medicines.  Dramamine makes most people…

Needed it since two weeks after my last infusion!

The infusions are not lasting as long for me as they did when I started on this medicine back in 2010.  When I first started getting Tysarbi infusions, I would be able to fully function until my next dose 28 days later.  2012 started seeing a decline in the length of benefits.  Would only remain functional 3 and a half weeks after infusions.  During the second half of 2014 went down to 3 weeks flat.

Now the infusions only last two weeks.  Then I am back to being completely clumsy 24 hours a day.  Good thing the house we purchased is set up for my lack of coordination!  Have handle bars on the upstairs bathroom toilet  and a safety rail on my side of the bed in our bedroom.

Even better is the wheelchair ramp that leads from our main level…

In response to The Daily Post’s writing prompt: “Half and Half.”

Positive and negative numbers were the only thing that stumped me when I started dealing with them in 8th grade Algebra.  Fortunately, my math teacher was able to put it into terms I understood.  He told me to consider it the same as my checking account.  You want to be on the positive side.  Negatives get you into real troubles in banking!

Like the rest of life, it just depends on your perception of the numbers.  I prefer positive, but don’t we all?

Try to be positive in my daily life, but my husband says I come across as negative.  So which one of us is actually being negative?

In response to The Daily Post’s writing prompt: “Tattoo….You?.”

Can’t have tattoos because I have to have a MRI at least once a year.  That and I am scared to death if needles!

Just following the assignment for today for the Blogging101 course I am taking.

Chose to join Three Word Wednesday

Three Word Wednesday.

Still awaiting a response on the use of the words in our works. Can we use optimally in place of optimal?  Because I see how to use the three words in a simple sentence if I can use optimally!

I collect optimally polished metallic objects to amuse my cat with.

Our assignment for today with the Blogging 101 course was to create a Feature to add to our blogs.  Since most of my blog posts deal with my health in some way or another I am creating an Infusion Update category that I want to include in my blogs at least by evening on every Thursday.

My infusions tend to always go well, it is just what happens on the 28 days between each infusion that is interesting.  Some times end up with a UTI (Urinary Tract Infection) because my immune system is lower than most people’s is due to the drug that is infused in my body.  Also means I tend to get sicker than normal.  If my husband is exposed to the slightest bug at work, it may not affect him, but I’ll end up coming down with whatever bug is going around.

Got a call from the…

Today was the last day of the blogging 101.  Just posted a question about where to go to sign up for the next course!

Can’t wait until 201 gets started!