Day: August 5, 2015

Needed it since two weeks after my last infusion!

The infusions are not lasting as long for me as they did when I started on this medicine back in 2010.  When I first started getting Tysarbi infusions, I would be able to fully function until my next dose 28 days later.  2012 started seeing a decline in the length of benefits.  Would only remain functional 3 and a half weeks after infusions.  During the second half of 2014 went down to 3 weeks flat.

Now the infusions only last two weeks.  Then I am back to being completely clumsy 24 hours a day.  Good thing the house we purchased is set up for my lack of coordination!  Have handle bars on the upstairs bathroom toilet  and a safety rail on my side of the bed in our bedroom.

Even better is the wheelchair ramp that leads from our main level…

In response to The Daily Post’s writing prompt: “Half and Half.”

Positive and negative numbers were the only thing that stumped me when I started dealing with them in 8th grade Algebra.  Fortunately, my math teacher was able to put it into terms I understood.  He told me to consider it the same as my checking account.  You want to be on the positive side.  Negatives get you into real troubles in banking!

Like the rest of life, it just depends on your perception of the numbers.  I prefer positive, but don’t we all?

Try to be positive in my daily life, but my husband says I come across as negative.  So which one of us is actually being negative?

In response to The Daily Post’s writing prompt: “Tattoo….You?.”

Can’t have tattoos because I have to have a MRI at least once a year.  That and I am scared to death if needles!

Just following the assignment for today for the Blogging101 course I am taking.

Chose to join Three Word Wednesday

Three Word Wednesday.

Still awaiting a response on the use of the words in our works. Can we use optimally in place of optimal?  Because I see how to use the three words in a simple sentence if I can use optimally!

I collect optimally polished metallic objects to amuse my cat with.

Our assignment for today with the Blogging 101 course was to create a Feature to add to our blogs.  Since most of my blog posts deal with my health in some way or another I am creating an Infusion Update category that I want to include in my blogs at least by evening on every Thursday.

My infusions tend to always go well, it is just what happens on the 28 days between each infusion that is interesting.  Some times end up with a UTI (Urinary Tract Infection) because my immune system is lower than most people’s is due to the drug that is infused in my body.  Also means I tend to get sicker than normal.  If my husband is exposed to the slightest bug at work, it may not affect him, but I’ll end up coming down with whatever bug is going around.

Got a call from the…

Today was the last day of the blogging 101.  Just posted a question about where to go to sign up for the next course!

Can’t wait until 201 gets started!

Miss the man I married back in December of 1995.  He was kind back then.  We had fun together driving around the back roads of the state of Missouri.  I want him back!

Had no idea how to reach him.  He is more interested in the PlayStation downstairs, than anything else.  No clue how we drifted apart.  Granted my body won’t let me go caving now.  Am stuck in this damned wheelchair.

Wanted to be able to get out of this house so bad, but there was no ramp.  Worked on getting a ramp built, but had to depend on the help of others to get it done.  Community ramp building program was who eventually built our ramp for us.  Now I can come and go as weather permits.  Unfortunately. I can not deal with hot temperatures.  Anything over 65 degrees and I get worn out.  Thankfully, this house…

It started with an appointment with a nurse from my neurologist’s office.  She was going over the results from my neuropsych testing back in June 2015.  Turns out they discovered I was color blind!  Knew that since I was in high school.  Am both depressed and anxious.  No surprise there, either.  The appointment cost my normal co-pay for a specialist of $50.  They also determined I had a spatial vision problem.  In English it means I have problems judging distances.  Learned that one a long time ago the hard way.  Putting a full glass of liquid on a flat surface like a table is a challenge for me.  Good thing I haven’t driven since before we moved into this state back in 2008.

So the Physician’s Assistant  prescribed Lexapro  5 MG once a day for the depression and anxiety.  The only side effect I’ve experienced so for (maybe) a migraine like…

The prompt for today from WordPress is Style Icon.  Am willing to get out and tell you up front:

I HAVE ABSOLUTELY NO STYLE!!

Tripping over my own feet is a normal for me.  Never even had any grace as a child.  Was true even long before I ended up in a wheelchair due to multiple sclerosis.  Am a natural born klutz.

Make the 3 Stooges look mild in their comedy acts.  At least they were trying to be funny!  My body just falls for no deicernable reason.

My only style is that I now am able to fall with out hurting myself!  Learned that partially from the Tae Kwondo self defense classes I took along with the man who would later become my husband, the rest is from experience and the way we set up our house here in MN.

Ever since my teenage years friends have been few. I go for quality not quantity, and not many people can cope with my mood swings. I promised to do this post so that I could get to grips with my illness and maybe help others with similar symptoms. This isn’t easy for me to do, in fact this is the 15th time I’ve started writing this post from scratch and I’m not sure how often I edited the previous versions.

When I was given the push from a job I loved doing, with people I could relate to, for managers no-one liked, in early 2009 just as the credit crunch was beginning to bite, I couldn’t have known this would start a huge landslide downhill to my darkest recesses. I had been working as a temp since 2003 (6 years my friends and you dear reader). The company decided to…